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Explore helpful information, tools, and organizations to support people living with Parkinson’s disease and their care partners

Coming to terms with hallucinations and delusions takes a lot of courage. These tools and resources were created to help support you wherever you are in your treatment journey, whether you’re learning more about your disease, finding acceptance, or advocating your needs.

Help is there if you speak up

Hear Ryan and advocates discuss how breaking the silence has changed the way they view the disease today.

Helpful resources for getting started

Get the facts

Learn about Parkinson’s-related hallucinations and delusions, including causes and who’s at risk, using this basic fact sheet.

Start preparing

Navigating Parkinson’s-related hallucinations and delusions can be challenging for the whole family. Use these tips to help create a personalized and compassionate care plan that best suits you and your loved ones.

Illustration of user engaging with the screener tool online

Take a 4-question screener

If you or the person you care for has Parkinson’s, answer these 4 simple questions and share them with your doctor. This will help your doctor determine if you are experiencing some of the non-motor symptoms of Parkinson’s disease.*

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*Please know that we do not save your information.

If you prefer to complete the 4-question screener later, you can download the screener to fill out and take to your next doctor’s visit. For a full evaluation, download both the screener and the discussion guide, as these tools work together to provide a more complete assessment.

Prepare for your doctor's visit

Bringing up symptoms like hallucinations and delusions can feel intimidating. Print this form out and bring it with you to your next appointment to help start your discussion.

Learn about symptoms together as a family

Navigating the challenges of Parkinson’s disease-related hallucinations and delusions as a care partner can be overwhelming. This guide offers insights and practical advice tailored specifically for care partners and other members of the family.

Connect with a Patient Educator

Locate a Specialist

Hallucinations and delusions can be a confusing part of Parkinson's disease, but you are not alone. A specialist, an expert in managing both motor and non-motor symptoms, can provide clarity and support. Connect with a specialist to better understand these symptoms and discuss treatment options.

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If you are a licensed US healthcare professional and are interested in being listed as a specialist, please fill out your information on the Specialist Sign-up Form.

Build a connection

These committed organizations can give you more information about Parkinson's disease-related hallucinations and delusions.

The Davis Phinney Foundation provides resources and connections that enable people living with Parkinson’s to take action that can immediately improve their quality of life. The organization impacts hundreds of thousands of individuals and families each year through community programs, the funding of quality-of-life research, and extensive online content.

Phone: (866) 358-0285

The Independent Parkinson’s Network (IPN) is a network of professionals helping other professionals. Unlike other national organizations serving the Parkinson’s community, IPN is the only organization of its kind in the US. We are not a national organization, but rather a consortium of independent parties providing “boots on the ground” and locally funded services to the Parkinson’s community to include education, support, and exercise.

Phone: (412) 837-2961

The Michael J. Fox Foundation is dedicated to finding a cure for Parkinson’s and to ensuring the development of improved therapies for those living with the disease today through an aggressively funded research agenda.

Phone: (212) 509-0995

Parkinson & Movement Disorder Alliance (PMD Alliance) is a community of movers and motivators working hand-in-hand with those living with a diagnosis, their care partners, adult children, and support group leaders to deliver education and connection to those impacted by movement disorders.

Phone: (800) 256-0966

The Parkinson’s Foundation makes life better for people with Parkinson’s by improving care and advancing research toward a cure. In everything we do, we build on the energy, experience, and passion of our global Parkinson’s community.

Phone: (800) 473-4636

Join our next Parkinson’s event

Register for an upcoming Parkinson’s disease event. These events offer a chance to connect, learn about Parkinson’s disease, and discover the latest developments in care. Sign up for an event near you.